ProgeriaProject

Just three teenagers trying to get the word out that progeria is a serious aging disease. Please follow and reblog. For more information go to:

"At first, to me it was just another science project, but now it means so much more."


http://msmprogeria.webs.com/

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This is Adalia Rose. She’s 5 years old and has Progeria Syndrome. I can’t believe she’s this strong. She’s so beautiful and amazing, and honestly deserves a reblog on here. no it’s not a “reblog or you have no heart” post, but if you honestly can’t have this on your blog because it’ll make it look “ugly”, then i honestly don’t know what to say to you people. So yeah, this post is for Adalia Rose, the strongest 5 year old I’ve ever seen. Even her mom shaved her head for her. Bless this family. 

(via waituntilmybloghearsaboutdis)

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Progeria is such a heartbreaking disease. It’s just so sad. And when people first think of the description of progeria, which is a rapid aging disease, they think ooh Brad Pitt, Benjamin Button, Hollywood. But it’s so much more than that - and the opposite too. Children with progeria grow up knowing they’re not normal, they grow up knowing they’ll die faster. And it’s just so sad. The thing is, there isn’t even a treatment for it. Yeah, it may be rare and all cause it’s like 1 in 8 million, but it’s still happening right now. People make fun of them because of how they look, but it’s not like they can help it!! We should all appreciate our bodies now, and that we’re all healthy. & we should raise awareness for this, so there can be more funding for the Progeria Research Foundation. Those that can donate, SHOULD, because this is an important cause and it matters so much because there are children living today, knowing they’re not going to live the normal human lifespan.

dancewmoonlight:

Meet my cousin Lindsay, age 7.

As a baby, she was diagnosed with Hutchinson-Gilford Progeria Syndrome.  Progeria causes premature aging with an average life expectancy of 13 years.  The usual cause of death is heart disease.  Children with Progeria can also suffer strokes, heart attacks, arthritis and other conditions commonly associated with aging.

For the past three years Lindsay has been enrolled in the first ever Progeria clinical drug trials.  Trials are expensive.  Our goal is to find a treatment or potential cure for Progeria.  Please help us reach our goal by particiapting in the 6th Annual Miles for Miracles or sponsoring me with a donation.  Any help that you can offer is greatly appreciated!

Thanks so much!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Many thanks for your support — and don’t forget to forward this to anyone who you think might want to donate too!

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dinhclaire:

Rapid Aging Disease

I read an article about progeria several months ago, and to be honest, it made me cry.

There is so much more emphasis on finding cures for other forms of diseases, simply because those other diseases affect more people in the world. But that surely does not mean that those with rare conditions like progeria are struggling any less than those who do have more common diseases.

Those little girls must be sweethearts.

(via dinhclaire-deactivated20111014)

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